NICE Testimonial: A Life-Changing Gift

Thanks for all your well-wishes! I'm feeling a little bit better today, so your positive vibes must be working. Keep sending 'em my way!

Last week I received this testimonial from Kris Hansen, who is the President of the Epilepsy Association of Utah. It's truly incredible.

My daughter has a severe form of epilepsy called Dravet Syndrome. She has been having seizures since she was 18 days old. Last summer we had a chance to see the world’s leading experts in Dravet Syndrome at a conference in Chicago. They also arranged appointments for a few children to meet with these amazing specialists. There is only one doctor in the US that specializes in this syndrome although there are five from Europe including Dr. Dravet. We were lucky enough to get an appointment with one of the doctors out of Europe. This particular doctor is the leading expert in medication mixing for this type of seizure disorder.

We live in Utah and didn’t really have the money due to attend due to the cost of her care. To see this doctor was an amazing opportunity and we knew that seeing her in Europe would never really be a possibility. So we asked family to help and we started to save. We threw a yard sale to raise more money. This brought in quite a bit of money.

Right at the end I had an amazing man who stopped and asked why we were doing this. I told him and he started asking more questions. He started asking enough questions that he started to freak me out a little but he eventually left. He went and borrowed my neighbors computer. He came back with a reservation confirmation for the hotel that the conference was held in, paid for in full for the entire trip for us. I only know that his name is Howard. I don't know if that is a first or last name or even if it is his real name but that was the name on the sheet.

This doctor made a difference in our lives that can't be exclaimed. She made some medication changes that help us so very much. She is now starting to learn at school and is awake for more of the day and isn't throwing fits because of the headaches she was having. I don't know who this man is/was but my life will forever be changed because of him.

It sounds like Kris has a guardian angel. How amazing that this man happened upon her garage sale, and happened to ask questions, and had the compassion and generosity to actually do something about it. This man, Howard, is a paragon of kindness. People like him are the heroes of the world.

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